I want to go picnic on my wheelchair!
(Jeong Seon-Yu / 11 yrs old / spinal muscular dystrophy )
(spinal muscular dystrophy: an hereditary
motor neuron disorder that comes from continuous regression of motor neurons
between spine and lower part of the brain )
* Jeong
Seon-Yu’s wish has come true by the amount of money donated through the fund
raised for Stray Kids’ debut anniversary.
Seon-Yu
had visited Seoul National University Hospital for not being able to have his
neck straight for over 100 days after his birth. The result of thorough
examination was ‘spinal muscular dystrophy’. It is not a disease that treatment
can make some great effect but Seon-Yu is not losing his brave attitude and
getting physical and occupational therapy.
Seon-Yu has got a new hobby
Recently he got a new hobby since he has been staying in his bed all day, it’s a ‘picnic’ with his mom
and dad. His curiosity about outside world has been increased
since going outside wasn’t easy for him.
First meet with MAKE-A-WISH teachers and Seon-Yu
MAKE-A-WISH
teachers in their blue T-shirts caught Seon-Yu’s eyes who liked the color blue.
He looked shy of strangers at first but we could see his eyes twinkling in
curiosity looking at the teachers. To get familiar with him MAKE-A-WISH
teachers approached to Seon-Yu first and made a good and comfortable time
talking to each other.
What is Seon-Yu’s wish?
Thanks
to Seon-Yu’s parents and an assistant teacher, we had a time for getting to know
the biggest wish of Seon-Yu. He had told us many wishes including watching
fireworks and making a robot but we focused on what he wants to do the most at
this moment and fixed his final wish as ‘an wheelchair that can be used for
going outside’.
Excited for preparing the Wish-day