Jun Sang’s daily life is differ from others because of his rare disease.
Every morning when his friends head to school, Jun Sang starts the day with measuring his temperature when he was a freshmen in middle school He battles with high fever and pain brought on by a critical illness known as Fanconi’s anemia that occurs in 2-4 people a year. After experiencing those unexplained symptoms, the entire body becomes so exhausted that one needs to sleep for two days. There are more days when Jun Sang was absent from school and he meet the school nurse more than the class teacher while attending the school. Jun Sang gets used to his daily life that is different from other people.
* Fanconi anemia: not just a normal anemia caused by a lack of red blood cells, but it is affected a lack of all the blood components which abnormalities in the heart, kidneys and skeletal system.
Struggling with critical illness was a difficult trial for the little boy slightly over three years old.
Ten years ago, young Jun Sang, who was only three years old, saw a doctor in local clinic due to frequent nosebleeds and abdominal pain and was diagnosed with possible Fanconi’s anemia. Unwilling to believe the diagnosis results and putting the big hospital visit aside, they continued on as a normal family until one day, his pants were completely soaked with blood. Surprised, they immediately visited the hospital and their doubts were confirmed. There are several days when the family rushed to the emergency room once a week since he was 3 years old. Critical situations were barely overcome and there was a time when they had to prepare for the bad news. As the only treatment available to Jun Sang is a bone marrow transplantation (hematopoietic stem cell transplant), his family are still waiting for the right donor.
<"I like playing the drum because it helps me not think about the pain"- Jun Sang playing the drums>
Jun Sang’s special treatment is“music”
“Mom, everyone faces hardships, but I won't ever give up at any time.” Music comforted Sun Jang whenever he wanted to give up because of the pain all over his body. Classic music would soothe his angry heart, and rap music would automatically move his body to the rhythm. That’s why he started b-boying and playing drums. Then he happened to join the youth DJing class supported by the ward office. The music was a big help to Jun Sang who had a problem with mood swings because of his disease, and soon Jun Sang has fallen in love with Djing since it allows him to edit music the way he wants. He analyzes songs for 4-5 hours a day and then uploads his music on YouTube. The persistence of Jun Sang, who is immersed in what he wants to do all day, has created the Jun Sang who he is today.
He started Djing to forget the pain and to have a wish.
Junsang's dream is to be a DJ and a producer. He is practicing DJing with Djing teacher's words "You'll be a star in the world" in my heart. Even when he feels anxious about the future, he still gets excited when he listens to music. Therefore, Jung Sang wishes to get a“mixing equipment.” This is because he could play music anytime and anywhere if he could carry around a portale mixing equipment. If he gets the mixing equipment, Jun Sang wants to host a DJing party at the hospital. For those friends who completely understands each other having with incurable diseases, Jun Sang wants to give them the time to dance along to the rhythm of the music even for at least one minute. Your support and participations is crucial for Jun Sang who wants to play a music to console someone can become a famous DJ in 10 or 20 years. Please grant the wish of "music Boy" Jun Sang together.